I just wanted to post a quick something on here to let you know, wherever you are, that everything is A-OK.
It occurred to me that I stopped writing this blog and it might lead some to wonder if perhaps the leukaemia did kill me off in the end. It's not fair to keep you hanging like that, especially if you happen to have found this blog looking for information about AML because you or a loved one has been recently diagnosed. If that is you, you need to know that there are happy endings.
While this blog was cathartic and necessary at one time, it became too painful to watch the people I got to know through it die. The wondering can be very difficult, when the blog posts wane and you can't know what happened because you never actually met. Amber, John, Alex, Alice, Megan and David - thank you for everything and you are so missed.
As for me, the truth is that I am fine. I still have GvHD and chronic fatigue, and I still have my regular clinic appointments and ECP treatment every six weeks. Nothing will ever be as it was. But I am now working as a midwife, Matt and I have moved house with the eponymous Leo our lovely pup, and we are in the process of renovating our Victorian semi in a chocolate box village in Warwickshire. Life seems to be getting back to normal: my hair is now shoulder length, and we're looking forward to starting IVF treatment in the next year or so.
If you're still in the midst of it all, I hope these blog posts bring you some comfort. I wish you the very best of luck with your treatment. But for now (and I'd never say never - I'm not cured yet!) over and out.
